End Blog

I have found translating my notes made when Julie was going through the latter stages of her illness extremely emotional.  I thought it would show some of the issues faced by carers’.  That I now believe was wrong, in describing some of the problems day to...

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27.3 Julie started to cook not having done so for months, even years. OK but it proved impossible – no potatoes, frying ham, ½ cabbage. Tried to say ok . Julie turned fridge upside down repositioned everything. Told her I had no issues with cooking. She upset but got over when it had gone out of her mind, quite soon 28.3 Had to cancel chiropodist. Julie got mad about me making appointment. She had been before but got really uptight this time. What to do – get on with it as it will be forgotten. It was important for someone to take over her nails, as I had been doing, but noticed nails needed to be shorter and chiropodist had all tools and sitting positions and support

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Today 2nd May 2020, I have been sad thinking about things that happened. I remember the thoughts and concerns, I had about stimulation, when Julie went into care. Of course it is important but soon she was in a world of her own. Initially we watched ballet and didpuzzles but soon that became too much as she could never get the pieces correctly alighned and the perimeter was completely beyond her. She always liked to read the paper or at least make out that was happening a hark back to the days she was a dynamic newspaper editor. The puzzles got simpler and then too much. Julie used to sit with the cares and close to the dining room and kitchen. It was lively and lots of to and fro and when the carers had there refreshments and rellaxation she would chip in to their conversations. I remember a really sad occasion when we were in Madeira, a favourite destination and were going out for supper. Julie was preparing herself and was a long time, so I peered into the bathroom and found she had put nail varnish on her eyebrows – bright blue. It was funny, sad and frightening all at the same time. I was scared she would damage her eyes. She had also ussed the bidet improperly. So a day of guilty reflections on my part, and how I could have been a better carer

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21.6 Back to hospital for 1410 appointment 22.6 Gentler day, back home, watch football. Next thing Julie had cast off. I am very worried about lack of support went back to hospital arrived at 2315. All, staff very good. Xray, new back slab. Back home 0200. Bed 23.6 Up at 0830, Julie subdued we’ll see? 29.6 Julie appointment 1640 November 2016 Madeira. Toilet function in bidet? painted eyebrows with nail varnish. Very worried about it getting in her eyes managed to get most off before we went out

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19.6 Finally spoke to Matron who said should have been sorted. Appointment made for 20.6 at 1430. Hospital later ‘phoned. Time and date wrong!!!1st thing Julie agitated and took cast off. Went to see GP Coggan at 1640 no doctor or nurse available even for 2 minutes. Me agitated. Saw Coggan but noticed as we got here Julie had removed her cast. Coggan referred to hospital, nurse dressed would and secured arm// My concern was an infection in an open wound 21.6 Back to hospital for 1410 appointment 22.6 Gentler day, back home, watch football. Next thing Julie had cast off. I am very worried about lack of support went back to hospital arrived at 2315. All, staff very good. Xray, new back slab. Back home 0200. Bed

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15.6.16 I guess the first day of actually seeing the effect of lameness. We had returned home from a visit to the hairdressers. I had repaired a step, one of many in our quirky house, and Julie fell up it with a crash and fell heavily. I dashed and saw immediately that her wrist was broken she was in obvious pain but not complaining. Dialled 101 to check on best hospital NO! use 999. The nearest hospital was Clacton but they did not do manipulation but gave morphine and an X ray. Fryatt did not do either so off to Colchester. More painkillers and morphine. Clearly blood from breakage where bone protruding. Knock out sedative to manipulate, release blood and back cast, antibiotics. Stay in overnight. Julie agitated.

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